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中国类风湿关节炎直报项目启动 - 首页滚动图片 - 国家风湿病中心

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中国类风湿关节炎直报项目启动

概述
11月27日,中国类风湿关节炎直报项目(CREDIT, Chinese Registry of rhEumatoiD arthrITis)正式启动,该项目由国家风湿病数据中心、北京医学奖励基金会联合主办。
\       11月27日,中国类风湿关节炎直报项目(CREDITChinese Registry of rhEumatoiD arthrITis)正式启动,该项目由国家风湿病数据中心、北京医学奖励基金会联合主办。

类风湿关节炎是一类反复发作、致残率较高的自身免疫性疾病,公众对这种常见病存在知晓率低、就诊率低、治疗率低的“三低状况”。在诊疗方面,医师队伍力量仍然比较薄弱,规范化诊疗服务水平还很有限。有的医院甚至连诊治这种疾病的风湿免疫科都还没有建立。据悉,我国只有1000多家医院里有从事风湿免疫疾病诊疗的医生,其中只有40%的医院拥有独立的风湿免疫科。此外,我国目前还没有类风湿关节炎方面的大样本临床研究数据,还没有一个完善的疾病数据库,很难制定符合中国国情的诊疗规范,这已经成为制约我国风湿病学发展的瓶颈问题。中华医学会风湿病学分会主任委员、中国医师协会风湿免疫科医师分会会长、国家风湿病数据中心主任、北京医学奖励基金会风湿病学专家委员会主任委员、北京协和医院风湿免疫科主任曾小峰教授在今天举办的中国类风湿关节炎直报项目启动会上谈到,国家风湿病数据中心的移动平台——风云助手,集数据采集、数据共享和临床诊疗于一体,通过模块化的呈现方式管理数据,借此建立全球最大、分类最全的风湿免疫病全程诊疗数据库,掌握中国人自己的类风湿关节炎流行病学、临床表型及预后资料,让世界听到了来自中国的声音。

未来5年时间内,CREDIT项目将结合中华医学会风湿病学分会、中国医师协会风湿免疫科医师分会“一市一科一中心”的学科建设规划,以“关爱身边的类风湿患者”为理念,在全国范围内开展“千家医院、万名医生、百万患者”的类风湿关节炎疾病直报、疾病随访、患者教育和医师培训等工作,力求探索建立慢性风湿免疫疾病的分级诊疗体系,规范类风湿关节炎的诊疗行为,改善此类患者的预后,同时建设一支高素质、高水平的诊疗队伍,更好地满足我国风湿免疫病患者的健康需求。

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